The Long Road

The Long Road

Tonight I write with sadness. I am feeling constrained, tied down by the life of my girl. For it’s long after the diagnosis, the therapy regimens and surgeries, the doctors appointments and research, that the life we have both chosen to lead is clear and ragged...
Self-Care

Self-Care

Today I feel connected to Source in ways more powerful than ever before. I feel it in the love of a friend, a giggle from my girl, the warm sun against the bright blue sky. Why does the sun shine brighter today? The answer is this: I am taking care of myself first....
Stirring

Stirring

Something is stirring in my girl. Yesterday she was very excited to tell me that she had a test coming up on money and that she would need real coins from her piggy bank to practice with. They were just sitting there, right? This morning, there it was again, that...
Holiday Sanity

Holiday Sanity

Holiday guidelines from a special needs girl to her mom: Slow down ~ do less ~ be present. My girl has a way of distilling it all down. Too much shopping makes her body hurt, and when her legs are in pain, she stops, just flat out shuts down. She simply can’t go...